CRG Approved Standards 2016 Children requiring domiciliary long term ventilation

Appendix to: Standards of care for Spinal Cord Injured children and young people (0-19 yrs.)

In accord with all children and young people, children who require long-term ventilation, have a right to be supported to participate in family and community activities, with facilities and access to services that are culturally competent and sensitive. The ability of children on long-term ventilation to lead ordinary lives and enjoy their childhood requires partnership between the children, their families and joint agency working crossing traditional boundaries. The approach to achieving inclusion for this group should seek to ensure that in every setting there are appropriate education, training, protocols, procedures and permissions in place to meet the child’s needs.’’ National Service Framework for Children Standard 8 - From Hospital to Home (2005)